A mom’s social media post that featured her young son’s unruly hair has led to a surprise diagnosis. It turns out he has an extremely rare condition known as uncombable hair syndrome.
The boy’s hair sticks straight up, all the time, and it cannot be tamed.
He was diagnosed only after a stranger reached out to suggest he might have UHS. The condition is so rare that only about 100 known cases exist. It’s characterized by dry, frizzy hair and it typically shows up before age 3.
The good news is that it’s not so serious, beyond the appearance of bed-head.
The boy’s hair doesn’t cause him any pain or put him at risk for other problems, except for perhaps skin that’s more sensitive than normal. UHS typically disappears when the patient hits puberty.
